EQ-5D-Y | Proxy version

For use when children or adolescents are mentally or physically incapable of reporting on their health-related quality of life, for instance because of severe intellectual disability or mental health problems.

Four proxy versions are currently available. Note that with a proxy version a caregiver who knows the child or adolescent well rates the health-related quality of life, as follows:

• Proxy version 1: The caregiver (the proxy) is asked to rate the child’s/adolescent’s health-related quality of life in their (the proxy’s) opinion.
• Proxy version 2: The caregiver (the proxy) is asked to rate how he/she (the proxy) thinks the child/adolescent would rate his/her own health-related quality of life, if the child/adolescent were able to communicate it.
• Interviewer Administered Proxy version 1: An interviewer asks the caregiver (proxy) to rate the child’s/adolescent’s health-related quality of life in their (the proxy’s) opinion.
• Interviewer Administered Proxy version 2: Developed for use either in face-to-face or telephone/computer interviews when children/adolescents cannot self-report their health state and the most appropriate proxy cannot complete a paper/digital questionnaire. Examples might include that the proxy cannot read or write due to poor literacy or impairment or is living away from the data collection site, making a telephone/computer interview preferable. Note that Proxy version 2 requires that the proxy reports on the child’s health-related quality of life, as he/she judge that the child would report it if he/she were able to do so.

If a language version is not available, please contact the EuroQol Office.