FAQS | EQ-5D-5L

I am not conducting a study but would like to use the EQ-5D to measure routine clinical outcomes or to set-up a registry. Do I still need to register?

Yes, the EQ-5D is subject to copyright protection. Anyone interested in using the instrument should first register with EuroQol, as you can only obtain EQ-5D by completing the EQ-5D Registration Form. We can then provide you with the requested EQ-5D versions, languages and modes of administration you require. Please note, you are not obliged to…

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What is the difference between the VAS, TTO and DCE techniques? Can they all be used to generate a quality adjusted life year (QALY) score?

The time trade-off (TTO), visual analogue scale (VAS) and discrete choice experiment (DCE) value sets differ in the technique used to elicit the values for the models. In the TTO task, respondents are asked to imagine they live in a certain suboptimal health state for 10 years and then to specify the amount of time…

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If there is no value set for my country, I am supposed to use an existing value set for a similar population. How do I assess whether a population is sufficiently similar?

Please see this webpage on choosing a value set. Many factors determine if another country’s value set can be used, such as geography, religion, language, level of development of the country, healthcare system etc. In addition, local HTA guidelines may come into play. Therefore, it is advised to contact local regulatory authorities about their requirements.…

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How should EQ-5D data (value sets) from multinational clinical trials be used?

Data on EQ-5D health states gathered in the context of a multinational trial may be converted into a single summary index using one of the available EQ-5D-3L value sets. There are different options available to do this using appropriate value sets, however, the choice depends on the context in which researchers or decision makers will…

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Why are general population values sets used?

To undertake a utility analysis, you will need to use a value set. Generally speaking, utility analysis requires a value set based on preferences from a general population. The rationale behind this is that the values are supposed to reflect the preferences of local taxpayers and potential receivers of healthcare. The EQ-5D value sets are…

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How do I refer to the EQ-5D-5L instruments in publications?

When publishing results obtained with the EQ-5D-5L, the following key references can be used:

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Can I publish our study using EQ-5D?

Yes, you are free to publish your results. If you would like to reproduce the EQ-5D questionnaire in your publication, please contact the EuroQol Office.

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Can I combine results from different modes of administration?

In some cases, data may be collected using different approaches within the same study. Three situations are not uncommon: data may be collected using a combination of self-complete versions and patient interview versions (e.g. in a study with trauma patients in which some patients can physically complete the questionnaire, but others cannot – though they…

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How can the digital based EQ-5D questionnaires be integrated into a larger set of patient questionnaires?

Typically, EQ-5D is one of several questionnaires that are used in a study. Depending on your situation, you will either be using a system such as REDCap to combine all these questionnaires and collect the data, or you will be working with an eCRF vendor who will take care of this.

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Where can I find STATA/SPSS tools for EQ-5D, such as syntax files?

Please contact the EuroQol office.

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