FAQS | EQ-5D-5L

Where can I find STATA/SPSS tools for EQ-5D, such as syntax files?

Please contact the EuroQol office.

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I have seen EQ-5D ‘language’ using 5 numbers (e.g. 12321 or 43251). What does this mean?

The descriptive system section of the EQ-5D questionnaire produces a 5-digit health state profile that represents the level of reported problems on each of the five dimensions of health, e.g. EQ-5D-5L health state 11313 represents a patient who indicates moderate problems on the usual activities and anxiety/depression dimensions and no problems on the remaining dimensions.…

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Am I allowed to make changes to the EQ-5D?

Without the prior written consent of the EuroQol Office, you are not permitted to alter, amend or convert the EQ-5D and related proprietary materials. If you have any plans to conduct a scientific study investigating a modification of EQ-5D please contact the EuroQol Office.

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Can I change the time frame of the questionnaire?

Without the prior written consent of the EuroQol Office, you are not permitted to alter, amend or convert the EQ-5D instrument and related proprietary materials. This includes changing the time frame. If you have any plans to conduct a scientific study investigating a modification of EQ-5D please contact the EuroQol Office.

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For what period of time do EQ-D5 instruments record health status

Self-reported health status captured by EQ-5D instruments relates to the respondent’s situation at the time of completion. No attempt is made to summarize the recalled health status over the preceding days or weeks, although EQ-5D-3L has been tested in recall mode. An early decision taken by the EuroQol Group determined that health status measurement ought…

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How are the self-complete, interviewer and proxy EQ-5D versions different?

EQ-5D is designed for self-completion by respondents. However, several other modes of administration are also available. The interviewer version is convenient when respondents are unable to read or write, or when subjects are unable to come to the study site. An interviewer will read the instructions and record the responses. Proxy EQ-5D versions are available…

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Do I have to pay for using the EQ-5D instrument?

Licensing fees are determined by the EuroQol Office based on the user information provided in the registration form. If applicable, the size of the license fee depends on the type of study, funding source, sample size and number of requested EQ-5D versions and languages. You are not obliged to purchase the EQ-5D by registering. Click…

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Once I have registered, what will be included in the contents of the EQ-5D package of information that will be sent to me? If in a digital mode of administration, how will that be shared with me/in what form?

The EuroQol Office team will determine if a license agreement needs to be drawn up and whether a license fee is applicable, in accordance with our EQ-5D User License Policy. EQ-5D paper versions will be provided as a Word document. For electronic versions, an Excel sheet will be provided with the EQ-5D labels, together with…

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How can I obtain a EQ-5D instrument?

If you have already seen the EQ-5D-5L and/or have decided to go ahead and use it, please register your study/project/trial first, by completing the EQ-5D registration form. The EuroQol Office will then contact you by e-mail and inform you about the terms and conditions which apply if you decide to use the EQ-5D, including licensing…

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How are value sets obtained?

EQ-5D value sets are created by conducting a valuation study. In an EQ-5D valuation study, respondents (often members of the general public) are asked to indicate how good or bad some of the EQ-5D health states are. The answers are then combined into a statistical model, with which the value set is created. See here…

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