FAQS | EQ-5D-Y-3L

How do I refer to the EQ-5D-Y instruments in publications?

When publishing results obtained with the EQ-5D-Y, the following key references can be used:

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Can I publish our study using EQ-5D?

Yes, you are free to publish your results. If you would like to reproduce the EQ-5D questionnaire in your publication, please contact the EuroQol Office.

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Can I combine results from different modes of administration?

In some cases, data may be collected using different approaches within the same study. Three situations are not uncommon: data may be collected using a combination of self-complete versions and patient interview versions (e.g. in a study with trauma patients in which some patients can physically complete the questionnaire, but others cannot – though they…

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How can the digital based EQ-5D questionnaires be integrated into a larger set of patient questionnaires?

Typically, EQ-5D is one of several questionnaires that are used in a study. Depending on your situation, you will either be using a system such as REDCap to combine all these questionnaires and collect the data, or you will be working with an eCRF vendor who will take care of this.

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Where can I find STATA/SPSS tools for EQ-5D, such as syntax files?

Please contact the EuroQol office.

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I have seen EQ-5D ‘language’ using 5 numbers (e.g. 12321 or 43251). What does this mean?

The descriptive system section of the EQ-5D questionnaire produces a 5-digit health state profile that represents the level of reported problems on each of the five dimensions of health, e.g. EQ-5D-5L health state 11313 represents a patient who indicates moderate problems on the usual activities and anxiety/depression dimensions and no problems on the remaining dimensions.…

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Am I allowed to make changes to the EQ-5D?

Without the prior written consent of the EuroQol Office, you are not permitted to alter, amend or convert the EQ-5D and related proprietary materials. If you have any plans to conduct a scientific study investigating a modification of EQ-5D please contact the EuroQol Office.

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Can I change the time frame of the questionnaire?

Without the prior written consent of the EuroQol Office, you are not permitted to alter, amend or convert the EQ-5D instrument and related proprietary materials. This includes changing the time frame. If you have any plans to conduct a scientific study investigating a modification of EQ-5D please contact the EuroQol Office.

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For what period of time do EQ-D5 instruments record health status

Self-reported health status captured by EQ-5D instruments relates to the respondent’s situation at the time of completion. No attempt is made to summarize the recalled health status over the preceding days or weeks, although EQ-5D-3L has been tested in recall mode. An early decision taken by the EuroQol Group determined that health status measurement ought…

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How are the self-complete, interviewer and proxy EQ-5D versions different?

EQ-5D is designed for self-completion by respondents. However, several other modes of administration are also available. The interviewer version is convenient when respondents are unable to read or write, or when subjects are unable to come to the study site. An interviewer will read the instructions and record the responses. Proxy EQ-5D versions are available…

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