EuroQol Toddler and Infant Populations (EQ-TIPS) multinational content validity testing
EQ-TIPS Background
The EQ-TIPS is a proxy-completed, experimental measure developed by the EuroQol Group to measure and value health in children aged 0-3 years. EuroQol experimental measures are tools which are still under development and may change as work on the instrument proceeds.
The EuroQol Research Foundation has funded a large-scale project for further multi-national development of the EQ-TIPS descriptive system. This was deemed important to ensure that the EQ-TIPS had wide cross-cultural content validity, and inform any changes, before establishing its psychometric performance.
- Multinational stakeholder engagement on the experimental EQ-TIPS (v2.0) descriptive system
- Multinational content validity testing with caregivers of infants and toddlers on the modified experimental EQ-TIPS (v2.0)
- Psychometric Testing of the revised experimental EQ-TIPS descriptive system (v3.0)
- Stakeholder engagement on valuation of the EQ-TIPS
Further information on the multinational content validity testing with caregivers of infants and toddlers is included below.
Project aims
To evaluate the content validity (comprehensibility/ understanding, relevance, and comprehensiveness) of the modified experimental
EQ-TIPS-5L (v2.0) from the perspective of caregivers of children, with and without a health condition.
Methodology
Caregivers of children (0-3 years), typically a parent, were recruited from 8 countries:
- Argentina (Spanish)
- Australia (English)
- Canada (English)
- Egypt (Arabic)
- Germany (German)
- Singapore (English)
- South Africa (English)
- UK (English)
Participants were purposively recruited for 2 focus groups per country with an aim to balance caregiver gender, child age, and the presence of health conditions (child).
A standard topic guide was developed and used across all countries to facilitate discussions about EQ-TIPS. A modified version of the
EQ-TIPS v2.0 descriptive system was tested. Each focus group was conducted by ≥2 trained local researchers. The discussions were recorded and transcribed verbatim.
Data extraction and analysis followed an a priori framework, standardized across countries, focusing on comprehensibility/understanding, relevance and comprehensiveness.
Country-level data were translated into English, collated and synthesized for analysis.
Public and patient involvement at the country level supported the project at multiple stages.
Key Findings
- Most found the EQ-TIPS comprehensive and relevant for measuring HRQoL for their child.
- Participants suggested improvements for the dimension headers or parenthetical example wording to improve understanding and relevance.
The results of the first two phases of the large-scale research project and extensive input from an Expert EuroQol Advisory Group, Public and Patient Representatives, The EuroQol Version Management Committee, Clinical Experts and EuroQol Experts resulted in the development of EQ-TIPS version 3.0, which is currently being tested further.
Project Team
PI: Janine Verstraete
Argentina: Maria Belizan M and Natali Ini
Australia: Elia Bidgood and Kim Dalziel
Canada: Fatima Al Sayah and Alison Soprovich
Egypt: Samar Farid
Germany: Ole Marten, Kristina Ludwig, Dennis Grothe and Wolfgang Greiner
Singapore: Nan Luo and Lee Jie Cheng
South Africa: Janine Verstraete and Lasse Herdien
UK: Jill Carlton and Tessa Peasgood
Advisors: Fanni Rencz, Aureliano Finch, Michael Herdman, Simone Schieskow, Brendan Mulhern, Jill Carlton and Tessa Peasgood
To use the EQ-TIPS as a collaborator, please complete the registration form or contact rd@euroqol.org for further information.