Data repository

Data catalogue

Welcome to the SAVED Data Catalogue. This catalogue contains a description of the data that are available for secondary analysis. If you want to request access to the data please fill out the application form.

Project ID	Title	Country	Method	Population	Condition	Age Range	EQ-Instrument	Objective	Status	Working Group
218-RA	Analysis of the measurement properties of the Brazilian-Portuguese version of the health-related quality of life instruments	Brazil	Survey	General Population; Disease specific	Disabling musculoskeletal pain	8-18	EQ-5D-Y-3l; EQ-5D-Y-5L	Psychometric properties of the 3L and 5L versions of EQ-5D-Y, reliability [internal consistency, reliability, measurement error], construct validity, known-group validity, feasibility, celing- and floor effects.	Available	Descriptive System; Youth
225-RA	Assessing and comparing psychometric properties of both 3L/5L of EQ-5D-Y and adult EQ-5D versions in adolescents with prevalent disease conditions in Ethiopia	Ethiopia	Survey	General Population; Disease specific	Pulmonary TB; Epilepsy	12-17	EQ-5D-Y-3l; EQ-5D-Y-5L; EQ-5D-3L; EQ-5D-5L	Psychometric properties of the 3L and 5L versions of EQ-5D-Y and the adult EQ-5D, feasibility, reliability, known group validity, test-retest reliability, responsiveness, and preferences for the two versions.	Available	Youth
20190250	Psychometric testing of proxy EQ-5D-5L-Y in caregivers of paediatric patients with idiopathic scoliosis	China	Survey	Disease specific	Juvenile or Adolescent Idiopathic Scoliosis	8-15	EQ-5D-Y-3l; EQ-5D-Y-5L	Feasibility of proxy 5L-Y and compare its agreement with proxy 3L-Y and self-report 5L-Y. Inter-rater reliability, redistribution properties, classification efficiency, relative efficiency, responsiveness.	Available	Youth
20180140	Validity, Responsiveness and Test-Retest of EQ-5D- 3L-Y and EQ-5D-5L-Y and their proxy versions in Pediatric Patients in Indonesia	Indonesia	Survey	Disease specific	Chronic malnutrition; Acute Lymphoblastic Leukaemia; Asthma; Major Thalassemia; Haemophilia	8-16	EQ-5D-Y-3l; EQ-5D-Y-5L	Compare Y3L and Y5L in terms of feasibility, redistribution properties, ceiling effect, and discriminatory power. Furthermore validity, test-retest reliability, and responsiveness will be tested.	Available	Youth
20180730	Validation of the UK English version of the EQ-5D-Y-5L in South Africa	South Africa	Survey	General Population; Disease specific	Acutely-ill [Resperatory disease, Oncological disease, Burns, Post-surgery]; Chronically-ill [Cerebral Palsy, Neuromuscular Disease, Spina Bifida, Rheumatologial disease, ADHD, Autistic Spectrum Disorders]	8-15	EQ-5D-Y-3l; EQ-5D-Y-5L	Assess construct validity, known group validity, discriminant validity, test-retest reliability, and responsiveness.	Available	Youth
20170330	Psychometric validation of the Chinese version of EQ‐5D‐Y for China in three medical conditions	China	Survey	General Population; Disease specific	Juvenile or Adolescent Idiopathic Scoliosis; Congenital Heart Disease; Childhood Leukaemia	8-18	EQ-5D-Y-3l; EQ-5D-Y-5L	Assess validity [group comparison with PedsQL and cinical characteristics] and reliability [test-retest].	Available	Youth
227-RA	Comparison of the Afaan-Oromo language version of teh EQ-5D-Y-3L and the EQ-5D-Y-5L performance among children and adolescents in Ethiopia	Ethiopia	Survey	General Population; Disease specific	Acute Lymphocytic Leukemia; Congestive Heart Failure; Asthma	;8-15	EQ-5D-Y-3l; EQ-5D-Y-5L	Culturlaly adapt self-complete versions and assess and compare psychometric properties	Available	Youth
144-RA	EQ-5D-5L vs 3L, CHU9D-Adolescent HIV	South Africa	Survey	Disease specific	HIV	10-18	EQ-5D-Y-3l; EQ-5D-Y-5L	Feasibility, reliability, and validity of EQ-5D-Y-5L	Available	Youth
389-RA	A head-to-head comparison of EQ-5D-Y-3L and EQ-5D-Y-5L in pediatric patients with heart diseases	Singapore	Survey	Disease specific	Congenital Heart Disease	8-18	EQ-5D-Y-3l; EQ-5D-Y-5L	Discriminative ability, test-retest reliability, convergent validity, ease of use, responsiveness	Available	Youth
85-RA	EQ-5D-Y for children with Osteogenesis Imperfecta	China	Survey	Disease specific	Osteogenesis Imperfecta	8-18	EQ-5D-Y-3l; EQ-5D-Y-5L	Feasibility, construct validity, known-group validity, responsiveness, overall performance comparison	Available	Youth
20170460	A head-to-head comparison of five-level (EQ-5D-5L-Y) and three-level EQ-5D-Y questionnaires in paediatric patients	Hong Kong	Survey	Disease specific	Jevenile Idiopathic Scoliosis; Neuromuscular Disease	6-17	EQ-5D-Y-3l; EQ-5D-Y-5L	Discriminative ability, test-retest reliability, convergent validity, ease of use, responsiveness	Available	Youth

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