EQ-DAPHNIE

EuroQol Data for Assessment of Population Health Needs and Instrument Evaluation

Project aims

To create research infrastructure for the EQ Group that would support future research projects which have specific research objectives/questions. The breadth of potential research topics would be characterized under two broad domains:

1. Population Health Status (e.g., country-specific population norms, disease burden, population health inequities)
2. Comparative Performance/Validation of Instruments (e.g., EQ-5D-5L, EQ-HWB, bolt-on dimensions

There are two research infrastructure assets for EQ members to utilize:

1. LimeSurvey infrastructure to collect their own data (modular format, multiple languages, measures, design options, dashboard, etc.)
2. Data (datasets from 15 countries; n=70,000)

Methodologic plan

See our webinars for more information:
EQ-DAPHNIE Webinar, December 7, 2021
Development of the EQ-DAPHNIE Data Infrastructure, July 9, 2024

Project timeline

Data charter

Data ownership will be with the EuroQol Group
Data is available for EuroQol members to use. See below for data access.
EQ-DAPHNIE data will be included in the Storage and Access for Valuable EuroQol Data (SAVED) project within the EQ Office (in line with Open Science/Fair data principles)

Data Charter
Authorship Guidelines

Data Access

The EQ-DAPHNIE survey includes 4 sections: social determinants of health, health and wellbeing status, health behaviours and habits, and health services and coverage. To apply for data access, complete this form. The Data Access Review Team (DART) will review your application within 2 months of submission.

For more information on the data available and overview of data requests, click here.

Project Team