The EuroQol Descriptive Systems Working Group will host four webinars (via Zoom) with the goal of exploring the critical link between conceptual frameworks and their implications for bolt-on interpretation and selection.
Each hour-long session features two well-established frameworks. Two presenters will each have 15 minutes to introduce their assigned framework (including core references and instrument examples) and explore how that specific ‘lens’ changes the interpretation and selection of bolt-ons. Following these two presentations, a discussant will highlight similarities and differences between the frameworks to kick off a 30-minute open discussion. Recordings will be made available via the EuroQol website.
Webinar on Philosophical Frameworks
Karnofsky/Dolan (1948; Singular, global rating): collapses complex profiles into one rating reported by a clinician, patient, or observer without structure, causation, context, or taxonomy (e.g., APGAR, EQ VAS, Subjective appraisal, wellbeing, or satisfaction). You-Shan Feng (Medical University Tübingen, Germany)
Sen-Nussbaum (1993; Capability to Function): specifies a portfolio of substantive freedoms within a context that empowers essential beings and doings (e.g., ICECAP). Richard Norman (Curtin University, Australia)
Discussion, Milad Karimi (BioMarin Pharmaceutical, Netherlands)
Presentation
