FAQS | General

How do I refer to the EQ-5D-Y instruments in publications?

When publishing results obtained with the EQ-5D-Y, the following key references can be used:

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How do I refer to the EQ-5D-3L instruments in publications?

When publishing results obtained with the EQ-5D-3L, the following key references can be used: If you used a value set in your study you can also include a reference to the publication describing that value set.

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How do I refer to the EQ-5D-5L instruments in publications?

When publishing results obtained with the EQ-5D-5L, the following key references can be used:

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Can I publish our study using EQ-5D?

Yes, you are free to publish your results. If you would like to reproduce the EQ-5D questionnaire in your publication, please contact the EuroQol Office.

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Can I combine results from different modes of administration?

In some cases, data may be collected using different approaches within the same study. Three situations are not uncommon: data may be collected using a combination of self-complete versions and patient interview versions (e.g. in a study with trauma patients in which some patients can physically complete the questionnaire, but others cannot – though they…

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How can the digital based EQ-5D questionnaires be integrated into a larger set of patient questionnaires?

Typically, EQ-5D is one of several questionnaires that are used in a study. Depending on your situation, you will either be using a system such as REDCap to combine all these questionnaires and collect the data, or you will be working with an eCRF vendor who will take care of this.

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Where can I find STATA/SPSS tools for EQ-5D, such as syntax files?

Please contact the EuroQol office.

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I have seen EQ-5D ‘language’ using 5 numbers (e.g. 12321 or 43251). What does this mean?

The descriptive system section of the EQ-5D questionnaire produces a 5-digit health state profile that represents the level of reported problems on each of the five dimensions of health, e.g. EQ-5D-5L health state 11313 represents a patient who indicates moderate problems on the usual activities and anxiety/depression dimensions and no problems on the remaining dimensions.…

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Am I allowed to make changes to the EQ-5D?

Without the prior written consent of the EuroQol Office, you are not permitted to alter, amend or convert the EQ-5D and related proprietary materials. If you have any plans to conduct a scientific study investigating a modification of EQ-5D please contact the EuroQol Office.

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Can I change the time frame of the questionnaire?

Without the prior written consent of the EuroQol Office, you are not permitted to alter, amend or convert the EQ-5D instrument and related proprietary materials. This includes changing the time frame. If you have any plans to conduct a scientific study investigating a modification of EQ-5D please contact the EuroQol Office.

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