Requesting data from the archive

Requesting data from SAVED for secondary analysis typically involves several steps to ensure proper access, adherence to ethical guidelines, and effective utilization of the data. Here’s a general outline of the process:

Identify Suitable Data

Browse the SAVED data catalogue and determine which data is relevant to your research question. If you need additional information on the data listed, contact us.

Prepare Your Research Proposal

Develop a clear and detailed research proposal outlining your research objectives, methodology, and intended use of the data. This proposal should explain how you plan to analyse the data, what your deliverables are, and how the results contribute to existing knowledge in the field and contribute to the work of the EuroQol group.

Ethical Considerations

Consider any ethical implications of your research, particularly regarding data privacy and confidentiality . Ensure that your research proposal addresses these concerns and complies with relevant ethical guidelines and regulations.

Submit Your Request

Submit your research proposal through our project submission portal, along with any required documentation such as institutional affiliations, funding sources, ethical clearance from a review board, or a data management plan.

Wait for Approval

Your research proposal will be assessed by the Data Access Committee. You may be asked to provide additional information or clarification.

Data Transfer Agreement

Once your request is approved, you will be asked to sign a Data Transfer Agreement stipulating the terms and conditions upon which the data may be used. For example, the data may only be used for the research described in the research proposal, it may not be used for commercial purposes, and the data must be stored and managed in accordance with all applicable rules and regulations.

I would like applications to go via the good grants portal, but it would be nice for applicants to be able to see and/or have a copy of the application form without having to log into the portal. 

I removed Informed Consent for now, as this should have been dealt with by the primary data collector. Also consider removing this part [unless we provide identifiable data in which case privacy and ethical concerns do need to be addressed].