Working Groups

The Foundation supports research that that holds both scientific and strategic significance for the EuroQol Group and its members. To achieve this, specialized Working Groups have been instituted to develop robust research programs aligned with the organization’s scientific agenda. These Working Groups generate Requests for Proposals (RFP), inviting participation from both EuroQol Group members and other researchers. Responding to these RFPs stands as the principal avenue for researchers to secure funding for their projects from the Foundation. The Working Groups provide annual progress reports to the Executive Committee of the Foundation, outlining achievements and outlining future objectives.

Presently, there are six active Working Groups:

Descriptive Systems

Objectives:

To explore the conceptual basis for generic preference-based HRQL measures (i.e., descriptive and measurement work).
To investigate the conceptual basis and develop a framework to rationalize the development of various bolt-ons and bolt-offs.

Chair

Brendan Mulhern

Deputy Chair

Tessa Peasgood

Members

Mark Oppe

Health Preference Research Director & Co-founder

Nan Luo

Benjamin Craig

Brendan Mulhern

Chair - Desriptive working group

Jan Abel Olsen

Professor

Tessa Peasgood

Senior Lecturer

Fanni Rencz

Senior Scientist

Valuation

Objectives:

investigating how the existing valuation methods used for EQ instruments may be further refined;
investigating new approaches to valuing health;
investigating the most appropriate methods for valuing new EQ instruments;
exploring normative issues related to valuation, for instance, in the context of value sets being constructed for and by different populations (e.g., patient groups or children/adolescents);
collaborating with working groups or approved groups on conceptual and practical issues related to the valuation of EQ instruments

Chair

Michał Jakubczyk

Members

Juan M. Ramos-Goñi

Senior Researcher

Richard Norman

Eleanor Pullenayegum

Yaling Yang

Michal Jakubczyk

Marcel Jonker

Bram Roudijk

Senior Scientist

David Mott

Populations and Health Systems

Objectives:

To initiate Requests For Proposals (RFPs) that promote and examine large-scale health system applications for EQ products.
To stimulate methodological and applied research relating to the use of EQ-5D in measuring local and system-wide performance, as well as its use in assessing population health. For example:

Methodological research in applications including, but not limited to, measurement properties, data collection, presentation formats, communication strategies.
Applied research including, but not limited to, evaluation of specific interventions or programs, case-mix adjustment, evaluation in population level interventions, assessment of disparities across population subgroups

To focus on applications within healthcare systems and in other non-health sectors.
To explore the development and use of new and existing EQ-5D products for large-scale applications in conjunction with the Business Office and the Interface Development WG.

Chair:

Juanita Haagsma

Members:

Bas Janssen

Senior Scientist

Nick Bansback

Erica Lubetkin

Associate Medical Professor

Sun Sun

Researcher Fellow

Fatima Al Sayah

Nils Gutacker

Paula Lorgelly

Professor of Health Economics

Juanita Haagsma

Assistant Professor

EQ-5D in Younger Populations

Objectives:

To develop EQ-5D instruments suitable for use in younger populations of various age ranges. This includes the validation of the EQ-5D-Y in younger age groups (using the proxy version).
To promote research to explore the validity of the EQ-5D-Y as a measure of health status in younger populations.
To work closely with the Valuation WG in developing a work programme for the valuation of EQ-5D-Y states.
To promote research in the field of application studies. This might include studies comparing EQ-5D-Y to other instruments and undertaking basic research in paediatric disease areas.
To develop and to test possible bolt-ons and bolt-offs (with regard to the self-care dimension) for the EQ-5D-Y in close co-operation with the Valuation Methodology WG.
To update the user guide for the 5-level Youth version.

Chair:

Michael Herdman

Members:

Nan Luo

Michael Herdman

Simone Schieskow (Kreimeier)

Janine Verstraete

Bram Roudijk

Senior Scientist

Tianxin Pan

Education and Outreach

Objectives:

Organize regular educational meetings for interested EuroQol members on specific topics related to research and application of EQ-5D.
Organize and promote regional meetings of researchers, decision makers and users interested in EQ-5D outside Europe and North America.
Propose educational and uptake initiatives to the Executive Committee that could be supported by the Foundation.

Chair: Zhihao Yang

Members:

Elly Stolk

Scientific Director

Mandy Van Reenen

Dissemination Manager

Henry Bailey

Lucila Rey Ares

Sr. Market Access Strategy Manager

Paul Kind

Visiting Professor

Zhihao Yang

Research Fellow

EQ-HWB

The EuroQol Group has established the EQ-HWB Working Group (WG), chaired by Clara Mukuria. The WG will delineate the research agenda and priorities for the EQ-HWB and EQ-HWB-S, organize the assessment of proposals and final reports, collect evidence to develop the two instruments, and support researchers in producing high quality studies with the goal of advancing the instruments intellectual property status. The WG is intended as an independent body that will coexist with the EQ-HWB SIG.

The aims of our working group are:

To generate knowledge and understanding of the performance and validity of the EQ-HWB and EQ-HWB-S in relevant populations
To support research, in collaboration with the Valuation WG, to aid in the development of a valuation protocol for the EQ-HWB-S and ways to score and/or value the EQ-HWB
To engage with international stakeholders and promote dissemination activities

Presently, there are six active Working Groups:

EuroQol Office

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