EQ-5D-Y | Available modes of administration

EQ-5D-Y is designed for self-completion by children and adolescents aged 8-15 years. Proxy versions, for completion by a caregiver or someone who knows the person well, are also available. Please note that you should select a digital version if you want to collect EQ-5D-Y data digitally, or in an App.

The currently available modes of administration are:

• EQ-5D-Y Self-complete version on paper
• EQ-5D-Y Self-complete version on Digital Devices

Previously, EQ-5D would have to be hosted on our dedicated server. Now, you can choose between hosting EQ-5D on your own server or the REDCap platform.

• EQ-5D-Y Self-complete version for use in REDCap
  RED Cap is a web application for building and managing online surveys and databases. It is mainly used in academic research.

• EQ-5D-Y Self-complete version for use in Qualtrics
  Qualtrics is a survey platform that is used by commercial and non-commercial researchers to manage everything from simple questionnaires to detailed research projects.

• EQ-5D-Y Interviewer Administered (IA) version
  Developed for use either in face-to-face or telephone/computer interviews when children/adolescents are capable of self-reporting their health state but unable to self-complete a paper/digital questionnaire. E.g. due to poor literacy, an impairment or inability to attend an interview in person.

• EQ-5D-Y Proxy version
  
  For use when children or adolescents are mentally or physically incapable of reporting on their health-related quality of life, for instance because of severe intellectual disability or mental health problems. Four proxy versions are currently available where a caregiver who knows the child or adolescent well is asked to complete EQ-5D as follows:

• EQ-5D-Y Proxy version 1: The caregiver (the proxy) is asked to rate the child’s/ adolescent’s health-related quality of life in their (the proxy’s) opinion.
• EQ-5D-Y Proxy version 2: The caregiver (the proxy) is asked to rate how he/she (the proxy) thinks the child/ adolescent would rate his/her own health-related quality of life if the child/ adolescent were able to communicate it.
• EQ-5D-Y Interviewer Administered Proxy version 1: An interviewer asks the caregiver (proxy) to rate the child’s/adolescent’s health-related quality of life in their (the proxy’s) opinion.
• EQ-5D-Y Interviewer Administered Proxy version 2: Developed for use either in face-to-face or telephone/computer interviews when children/adolescents cannot self-report their health state and the most appropriate proxy cannot complete a paper/digital questionnaire. E.g. due to poor literacy, an impairment or inability to attend an interview in person. The proxy reports on the child’s health-related quality of life state, as he/she judges that the child would report it if he/she were able to do so.

If you are unsure about which mode of administration to use, please contact the EuroQol Office. If a language version or mode of administration is not available, please contact the EuroQol Office.

Please note that the EuroQol Research Foundation is working on protocols for generating value sets for EQ-5D-Y. In the meantime, EQ-5D-Y data can be collected, but no value sets can be provided for this version.

(Version 06APR2022)